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Hace 2 días · A PPV of 30% or better is among the standards set by the European CF Society. Details of Swiss NBS for cystic fibrosis were in the study “ Cystic fibrosis newborn screening in Switzerland – evaluation and scenarios for improvement after 11 years of follow-up,” published in the Journal of Cystic Fibrosis.
Hace 4 días · Adult pwCF were included in 33 hospitals in 12 different countries for the HIT-CF Organoid Study (NTR7520). All participating clinical sites were members of the clinical trial network of the European Cystic Fibrosis Society (ECFS-CTN) and the study was conducted in the following countries: Belgium, the Czech Republic, Denmark, France, Israel, Italy, the Netherlands, Poland, Portugal, Spain ...
Hace 1 día · This is reflected in the dramatic increase in the number of pregnancies to people with CF in the United States and worldwide (Cystic Fibrosis Foundation, 2023). However, for pregnant women and breastfeeding mothers, ceasing ETI therapy may cause sudden and serious decline in lung conditions and risk their own health as well as the health of their babies (Trimble & Donaldson, 2018 ).
Hace 3 días · Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2006 PMID: 16678503: Detection of F508del mutation in cystic fibrosis transmembrane conductance regulator gene mutation among Malays. Zilfalil BA Singapore medical journal 2006
Hace 16 horas · The most current guidelines for bronchiectasis are the European Respiratory Society guidelines for the management of adult bronchiectasis, 3 which were last updated in 2017. Clinicians treating patients in whom bronchiectasis is the result of cystic fibrosis may want to consult the clinical care guidelines from the Cystic Fibrosis Foundation. 14
Hace 4 días · Testing recommendations for adult and pediatric populations are the same, regardless of whether the suspicion for cystic fibrosis (CF) arises from newborn screening or symptomatic presentation. Both the Cystic Fibrosis Foundation and European Cystic Fibrosis Society recommend sweat chloride testing.
Hace 4 días · Background Bronchiectasis is a condition characterized by abnormal and irreversible bronchial dilation resulting from lung tissue damage and can be categorized into two main groups: cystic fibrosis (CF) and non-CF bronchiectasis (NCFB). Both diseases are marked by recurrent infections, inflammatory exacerbations, and lung damage. Given that infections are the primary drivers of disease ...
