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Epidermolysis bullosa ( EB) is a group of rare medical conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction and are painful. Its severity can range from mild to fatal. [7] Inherited EB is a rare disease with a prevalence in the United States of 8.2 per million live births. [8] Those with mild cases may not develop symptoms ...
13 de abr. de 2015 · The Butterfly Child | TSN Original - YouTube. TSN. 610K subscribers. Subscribed. 36K. 12M views 8 years ago. 14-year-old Jonathan Pitre is an avid hockey fan who suffers from Epidermolysis...
4 de may. de 2018 · 330. 30K views 5 years ago. Jonathan Pitre was born with “the worst disease you’ve never heard of”, a rare and excruciatingly painful skin disorder called Epidermolysis Bullosa. But through...
6 de abr. de 2018 · Jonathan Pitre, who had a rare skin disease that made his skin as fragile as a butterfly's wings, passed away in Minnesota. He was a courageous and determined fighter who raised awareness for Epidermolysis bullosa and inspired many with his story.
18 de sept. de 2023 · Epidermolysis bullosa is a genetic condition that makes skin so fragile that it can tear or blister at the slightest touch. Children born with it are often called “Butterfly Children” because their skin seems as fragile as a butterfly wing.
23 de feb. de 2022 · Summary. What is butterfly skin disease? Epidermolysis bullosa is a rare skin condition that’s usually inherited. It makes the skin incredibly thin and brittle. People born with this condition...
Patient Organization DEBRA Austria Clinical Network EB Clinet
